StillPoint Resources

When families first learn that they are having a special needs child, the reality can be both emotionally overwhelming and socially isolating.  Stillpoint Resources is passionately committed to standing with these special families, offering counseling and educational support throughout the pregnancy.  During this period of anticipation and stress, our therapists help these expectant mothers and fathers express and explore their deepest feelings, their hopes and fears, in a safe and accepting environment.
stillpointresources.org/pages/staff.html
SEE ALSO: Stillpoint Resources »

Resources on Diagnoses

Congenital Diaphragmatic Hernia (CDH)
Cherubs—Congenital Diaphragmatic Hernia
Support group for parents and families of children with diaphragmatic hernia
www.cherubs-cdh.org

Center for Loss in Multiple Birth (CLMB)
Support organization for parents who have lost one or more of their children during a multiple gestation pregnancy. Special newsletters cover topics, including “knowing ahead,” by and for parents who have learned during pregnancy that one of their twins or multiples will not live long after birth. “Going longer,” was written by and for parents who are going through the remainder of a twin or higher multiple gestation pregnancy after one of the babies has died in utero.
climb-support.org

Congenital Heart Defects
Heart Connection: Support network, providing information and resources for children and adults affected by congenital heart defect
caheartconnection.org

Gastroschisis
GEEPS
Gastroschisis Exomphalos Extrophies Parent Support
An international network of families and friends of children born with abdominal abnormalities.
www.geeps.co.uk

Omphalocele
Mothers of Omphaloceles (MOOS)
Internet support group for families of children with omphaloceles. Includes links to other resources and addresses all facets of the condition.
omphalocele.com

Spina Bifida Association of America (SBAA)
The Spina Bifida Association of America's mission is to promote the prevention of spina bifida and to enhance the lives of all affected. They promote public awareness, and provide funding for research.

4590 McArthur Blvd., NW, Suite 250
Washington, D.C., USA 20007-4226
(202) 944-3285
(800) 621-3141
Fax: (202) 944-3295
E-mail: sbaa@sbaa.org
Web: www.sbaa.org/

Twin Anomalies
The Twin-Twin Transfusion Syndrome Foundation
Includes information for families during and after pregnancy, research updates, a message board and much more.
www.tttsfoundation.org

Twin Hope
Established in 1994, Twin Hope is a voluntary private non-profit organization dedicated to serving families, educating the public and professionals and broadening awareness of Twin-Twin Transfusion Syndrome and other twin-related illnesses.
www.twinhope.org
U.S. Post Office mail address:
Twin Hope, Inc.
2592 West 14th Street
Cleveland, Ohio 44113
502-243-2110 (Twin Hope 24-hour hotline)
E-mail: twinhope@twinhope.com

Resources on Post-partum depression

Depression After Delivery
Information to help parents differentiate “baby blues” from post-partum depression and post-partum psychosis. Also includes information on treatment, support groups and choosing a psychotherapist.
www.depressionafterdelivery.com

Resources on Pregnancy

American Pregnancy Information on fetal development, prenatal testing, multiple births, labor, birth defects and more.
www.americanpregnancy.org/index.htm

Resources on Birth

Includes information for professionals and families. Review sample birth plans and find helpful infant care and parenting tips.
www.birthsource.com/Scripts/default.asp

Comprehensive discussion of labor and birth and instruction in control of labor contractions from a certified childbirth education and RN — an excellent resource for mothers on bed rest who cannot attend childbirth classes in the community.
www.pregnancy.about.com/cs/childbirthclasses/l/blclassindex2.htm

Medline’s pregnancy Web site

A collection of Web sites for late-breaking news, health advice, pregnancy anatomy and physiology, prenatal nutrition and much more
www.nlm.nih.gov/medlineplus/pregnancy.html

Sidelines
Support for women on bed rest during pregnancy. Helpful articles on coping, passing time, family issues and more
www.sidelines.org

Resources on Breast-feeding

Breast Feeding Your Baby — The Childrens’s Hospital of Philadelphia
This comprehensive site offers information on getting started, recognizing effective suckling, troubleshooting difficulties and collecting and storing breast milk.
www.chop.edu/consumer/your_child/

LaLeche League
A comprehensive site with breast-feeding information for moms and professionals. Includes FAQs, support groups, conferences and much more. Information is available in foreign languages also.
www.lalecheleague.org

RETURN TO PREVIOUS »